Go, Virginia!!

I just came upon this website and am totally dazzled by the resources and content.  Impressive!  http://www.virginialyme.org/

I was also surprised and delighted that the Governor of Virginia organized a task force to study Lyme.  They held forums for patients and providers, both.  (I don't know how I missed out on that one!) Here's a link to the findings and recommendations. It's a step in the right direction, but we still have a long way to go.

Virginia Task Force Report

Holy horse pill, Bat Girl!

These new antibiotics are the biggest pills I’ve ever seen that are supposed to be swallowed whole.  Seriously??  Check this out!  They're huge!  

I've had the prescription for a few days now, but have been unwilling to take them until after the weekend.  If they work, I'll likely feel awful.  If they don't work, I'll likely feel awful.  You can imagine my resistance, I'm sure.  I have a 3 week trip away from home planned that starts mid-month and ends in December after my appointment with the naturopathic doctor in WI. Increasing my medications is a scary undertaking right now. 

In other news, I've finally crumbled under the pain and the pressure to manage it, so I've made an appointment with the UVA Pain Management Clinic next week.  I'm looking forward to seeing some experts about my protocol since this will likely be a long haul. My health care really is becoming a full-time job.

Stay tuned for the conversation with the doctor that denied me care last spring.  Someone in his office called on Friday to say he wants to talk to me in light of the test results I sent to him.  I'm taking pro-action, one doctor at a time.