September 9, 2012

I'm still in a holding pattern for my next steps

I am awaiting blood test results to follow up on my elevated liver enzymes during my ER trip last month. I returned home after 2 1/2 months on the road and saw my Lyme doc on Wednesday.  His approach is to continue to try to find antibiotics that I can keep down and give me more drugs to help me tolerate drugs.  Pharmacopia, is that you?  On Friday I saw my regular doctor, then trekked off to the pharmacy with a handful of prescriptions. After I got home, I realized one of them had not been filled and I called to follow up.  This is very weird to me, but the drug on hold is the drug to help me tolerate all drugs and my insurance company requires a verification from my doctor before they will cover it. The pharmacist said it could take up to 5-7 days so I'm officially declaring an extension to my drug sabbatical.  "YayBoo!" as we say around here.  Yay that my stomach gets a break and I can eat what I want, when I want.  Boo that my pain level and other icky ticky symptoms are increasing.

My Lyme doctor also informed me that the night before my appointment, all of his files for patients with Lyme Disease were subpoenaed.  It's hard not to feel defeated or like I'm engaged in some conspiracy theory but I am committed to a path of wellness, so there!

I also have very high hopes that I may be able to connect with an ND in Madison, WI that studied Lyme treatment in Europe and is having success in treating people.  She is teaching in Italy until the end of the month, so when she returns, I'll be writing and calling.  Keep your fingers crossed!

2 comments:

  1. When I follow the link, it says the petition is closed??????

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  2. Fingers crossed on both hands and thumbs hooked together!

    ReplyDelete